Hello Everyone!

Just a quick note tonight as it has been a busy day. The first day of chemo went well and so far so good. I went in this morning and everything is going well. The doc sent Home Health to do a medication changeover tonight and Val learned how to push the medication. She was a pro and even corrected the nurse a time or two! There are some side medications that help counteract the chemo and they get pushed at night (which is why they sent home health).

More of an update tomorrow.

Thank you for all of your well wishes and prayers.

Wayne

We've Got a Plan

I'm staring at 9 Doctor's appointments. That's a lot of data entry into Entourage (Mac version of Outlook).

It starts like this: Monday-Thursday is chemo - 4 hours each day.
Then, blood work, blood work, blood work.

We were thankful that he will be on the mend for the May 16th wedding in South Dakota, but what we didn't realize is that he blood count will be at its lowest that weekend. That means he is very vulnerable to sickness and will be tired. Hopefully he can overcome it to dance the night away with me...? Well, maybe a couple of dances.

This weekend I have to work on getting him to EAT. The next couple of weeks he won't be able to take much more than Ensure shakes, so I'm hoping he can pack it on this weekend to sustain him. I've got a freezer full of ice cream bars and the pizza place on speed dial.

Speaking of food, the ginger steak salad was fantastic! I would say this, though. Double the salad dressing. We were really rationing it out for 4 people, and none of us had enough dressing (which is delicious!) See Wednesday's post for the link to the recipe. It's a keeper.



Have a wonderful weekend!

Last of the Lightheartedness

Tomorrow is Wayne's "big" appointment. We'll have his chemo schedule & all the details that comes along with that. So, today is Lindsay's next-to-last day helping us with the kids. We thought we would sneak out for lunch - so we did. J.Alexanders for a veggie burger for me and chicken strips for Wayne (as much as he tries to eat high calorie foods, the weight continues to fall off of him).

We were people watching while waiting for our food when he says, "I'm anxious about tomorrow."

Me too.

Because I know the next week(s) will be tough going, I thought I'd post one more light blog entry. Fun stuff to take the edge off...

Handmade bubblebath/paint for the kiddos that can smell like anything you want
(including frosted cupcakes) Find it HERE.

A recipe for Chocolate Mint Brownies: HERE.


The place I get Claire's super cute hair stuff. HERE.

And, last but not least, my photography teacher is giving away a free spot to her next class (which has a waiting list of 581 people). Find out details HERE.

Now I leave you with some pictures of the kids playing on the floor last night (cuz' that's just the kind of Mom I am).

Complete Randomness

I still do not have any MD Anderson news to report other than getting records to them has been quite the ordeal. Wayne has been to three different hospitals in the Denver area, and of course they do not share records, even when his oncologist has privileges at each of them.

Wayne has an appt. on Friday to get the details of his next round of chemo, which should start Monday (if not this weekend). So, that's all I have to report on Wayne.

Now, for total randomness.

I'm taking a photography class and today I was taking pictures of Claire, and got a TON of adorable ones. Only to upload them and learn that 90% of them are blurry. I am getting so sick of that! The one above is us playing peek a boo. She'd hide her head behind the corner and then pop it out and I'd act all surprised. She loved it. I loved it more.

Next, is there anyone out there that needs a new pair of flip flops for summer? I have gone through all the brands: J.Crew, Havaianas, etc. Then, I slip on an incredible pair that my sister had worn over to the house. They are like walking on marshmallows and do not rub in between your toes. Where did she get them?

Target! I just LOVE that dang store. I wish I didn't. I spend way too much money there. But not too much on these lil' gems. They're 2.99! I highly suggest getting to your local Target before they are all sold out. I have been stalking mine, and they are always sold out (until I scored some tonight), so don't give up hope! Totally worth it. Trust me.

They are not online, so I don't have a link to show you what they look like, but they are plain - they look exactly like Havaianas, and come in brown and black. Really basic and they go with everything.



Claire would wear them, too, but she's just getting the hang of crawling.

Have you all discovered Pioneer Woman? I'm making her ginger steak salad for dinner tomorrow. It's my debut on the grill - I'm officially taking over grill duty as Wayne goes through chemo since the smell of food pretty much sends him over the edge. Tomorrow's blog may have graphic pictures of me with my hair on fire or the family politely choking down little, burnt pieces of meat - but dang it anyway, I'm excited!

Guacamole Recipe

I did not have a picture of my guacamole so I thought it made perfect sense to post a picture of Claire eating a cheerio.

Guacamole

4 Haas Avocados
1 Serrano Chile (not a jalapeno), finely diced
Fresh Lime Juice
Kosher Salt
Cherry Tomatoes, cut into 1/4 pieces, seasoned with salt and pepper
3-4 Garlic Cloves, minced
Cilantro, small chop (to taste)
Red Onion, small dice (to taste)

Get all your ingredients chopped/diced.

Then, smash your avocados up (I like them to be chunky, but again, whatever floats your boat). Immediately squeeze some lime juice on the avocados.
Add the rest of the ingredients to taste.
I like heat, so I leave some of the rib and seeds of the serrano chile, but if you don't, make sure you take those out before adding the chile.
I add to the bowl, a little at a time, until everything tastes good.

Kosher salt makes a difference, as does the serrano chile.

Enjoy!

Weekend Update

We had a busy day yesterday. Ken and Mom came over to help us around the house. Mom brought food (will post her recipe) and Ken installed baby gates, delivered our BBQ, and went to Home Depot for some shelving for Claire's room. I guess I should say HE had a busy day yesterday.

Claire is getting the hang of crawling. Considering she is 11 months old today, this is a good thing. Like I mentioned a while ago, we waited too long to put them up when Caeden was learning to crawl, so thankfully we are more prepared this time around.

Wayne is feeling better every day. He is able to put on t-shirts (getting things over his head was impossible until now), sleep without needing narcotics, and is getting stronger. Today we are going to the gym so he can walk on the treadmill. His goal is a mile. My goal is to run, although I haven't gone to the gym since his diagnosis, so who knows. I might just have a smoothie and call it a day.

Wayne talked to Mac this morning (his boss) - Getting things settled at work, which is a relief and also sad at the same time. Wayne is going on short term disability (6 months) so that he can go through multiple rounds of chemo and have surgeries without having to worry about job performance. Mac is such an amazing man, both personally and professionally, and the way he communicates with Wayne - honest and forthcoming - makes this transition not so scary. We are thankful everyday for our Microsoft family.

Speaking of work, I have spent a lot of time thinking about what I should be doing. Get a job? Go back to school (finish my Masters, or perhaps something else like nursing {better pay and flexible hours}) but we've decided to keep things how they are for now. Keep the kids at home instead of daycare is one less stressor for them (especially Caeden) and for all of us. With me at home, I can care for Wayne through chemo, through his recovery, and that is the most important. Health and family - both are worth the fight. I just hope you don't have to fight quite as hard as we have to.

Here's Mom's recipe for pork tacos. She just "whipped it up" but I did my best to nail her down for the recipe because it is soooo good. Perfect for the crockpot in the morning, so when you come home from work, all you have to do is squeeze a lime (On the taco or in a beer, I do not judge!).

Pork Tacos

Pork Roast
Can of diced tomatoes and green chiles
Diced onion
Taco seasoning packet plus a lil' extra (like more chili powder and cumin)
salt and pepper
1 1/2 C. water

Season the pork and toss into the crock pot. Add the seasonings, chilies, tomatoes, and onions. Cook on low all day. When ready, pull pork apart and add a bit of the juice to keep it moist. Excellent as left-overs, too.

Serve with:

Corn or flour torillas (warm)
Squeeze of fresh lime
Lettuce
Tomato (this time of year, buy cherry tomatoes, chop in half and season with pepper)
Guacamole (I make the BEST. If you do not have a favorite, let me know and will post mine)
Cheese
Salsa
Sour Cream

*I also saute a few onions until caramelized, but that's usually a weekend thing, not a weekday.

Serve with a fruit salad and wha-la!

It Takes Two Baby

Lindsay has been my helper all month. She has helped me so much with the kids. Thanks to her, they haven't gone without attention, a snack, a bath, OR a snuggle.

See Claire doing "Soooo Big!" up there? That's because Lindsay taught her how.



Caeden having a smoothie for a snack. Lindsay whipped this up in place of his request for a 7-11 Slurpee. Much better!



Caeden had his 4 year Doctor appointment the other day and they sent us home with a pamphlet about things ... one of the suggestions was teaching Caeden hopscotch. I didn't mention anything to Lindsay about it, but she must have read it on her own, because when I came outside, look what they were doing. Brilliant.


Yes, we are getting along just fine with Lindsay here.

What? You wonder what I do?

Take pictures, of course. :)

The Story of Us ...

A friend of mine asked me last night to tell her the story of how Wayne and I fell in love. I thought I was post the story here since I am hard pressed to come up with a topic today since Wayne is still on the same clothes and hasn't said anything witty today. Today I am on my own.

Long, long ago I was transplanted from Gillette, WY to Sturgis, SD during my middle school years. We moved due to my Mom and Dad divorcing, so the reason for going was really sad, but just as I was SURE my mom was ruining my life to force to me to leave my friends in Gillette, something amazing happened. I found myself flourishing there. I made wonderful, lifelong friends. I liked my teachers. I was happy! So, 7th and 8th grade were wonderful. The usual things kept me busy like cheerleading (I guess this isn't so popular anymore?), writing for the school paper, passing notes, and figuring out how to navigate into a teenager.

Then 9th grade happened. In Sturgis, 9th grade means High School. Me and my friends were happily unaware that we were nothing more than shark bait for the senior guys. The guys made a list of us (along with comments) as if they were picking out cattle.

Cattle.

So, there we were, on the "list." And there were these guys who befriended us. Purely innocent, no?

No.

Oh my gosh, how we had fun. (Please remind me to delete this post before Caeden and Claire learn to read.)

Wayne and his group of fellas and me and my group of friends all hung out that year. We learned what Purple Passion (grape flavored liquor ... like a wine cooler, if I recall) tasted like. We "cruised" in cars. We hung out. We laughed A LOT.

Now, what you need to know is that Wayne was quite resourceful. Somehow (I will spare the details, but lets just say he was brilliant. If only he used that brain for good instead of evil ...!)
he had a fake ID. But real good. This was back when kids could still outsmart the authorities. Back before technology took away all the fun ... (I say this as I look back on those days, but NOT as a Mom, because we all know I will most certainly deny all of this story when my kids are old enough to hear it).

So, I knew Wayne. But not very well. Then, one COLD night, I lost a friends' wallet (fell out of my pocket) along the road, and so there I was, walking up and down the street looking for this wallet ... and here comes Wayne in his dad's corvette.

Yes! I know!

Wayne and Tom were cruising around (that's what we did back when gas was .85 a gallon) and picked me (and Amber Flint) up to help us look for it. That was the beginning.

We dated behind my Mom's back (Sorry Mom! I know you understand it was completely worth the sneaking around when you look at your beautiful grandchildren, right?). I'll never be able to watch "Dirty Dancing" without thinking about how Wayne was too nervous to hold my hand while we were watching the movie, so I had to GRAB his.

That wonderful year came to an end and Wayne graduated high school and headed to basic training. My family moved back to Gillette, so we went our separate ways.

When I graduated high school, one of the first things I did was call Wayne. His parents have a super easy number to remember, I had it memorized for 3 years! It's 605.787.... Just kidding. Not going to give it away. You never know when solicitors are blog surfing.

Dang solicitors.

Anyway, I called him and he immediately came and picked me up... I don't think we were apart again. Co-dependent, but deliriously happy.

He proposed to me at Roughlock Falls ... he had me hunting for a tree with his parents' initials carved into it. And then I turned around. There he was, on one knee, asking me to marry him. I played hard to get and told him I'd have to think about it.

That isn't true. But I swear the rest of the story is.

We married young, I was 19 and he was 21. We will be celebrating 15 years in September. 15 years. We're getting to the point of being together longer than we have lived apart. How strange (and wonderful) is that to think about?

We spent 10 years without children - we spent many a weekend sleeping in ... spending money frivolously (does anyone remember his Audi A6?), and traveling (one of my favorites was Valentine's Day in London...).

Then we had Caeden. And Claire. And now we are wondering why in the world did we spend so much time sleeping in?? Seriously, we waited too long. They are our everything.

So here we are. The story of us in a nut shell.

Walkin'

Wayne's recovery is going well! He tries to walk 4 times a day for about a quarter of a mile each time. He can't wear anything other than his button-up p.j. top because of his inability to raise his arms to put shirts over his head, and he can't put on socks or shoes by himself. So, here he is, in his p.j. top, sweatpants on the bottom, and his sunglasses - going for a stroll.

Hopefully the neighbors won't report him as a homeless fella aimlessly walking through the neighborhood.

He is doing awesome -- starting to wean himself from his pain medication, and is in great spirits. He's sarcastic and bossy, so I know he's starting to feel better.

He'll be in recovery for another week (no driving). Then it's back to business with chemo.

Back in the Day

This marque sign (located underneath the infamous Taco Johns in Sturgis, SD) was created back in the day. Randy, look how long your hair was! And guys, are your jeans rolled up?! ;)

Rick and Randy waited for Wayne to come back from basic training the summer after high school graduation. Just like back then, Wayne came home without hair and a bit thinner.

Their favorite hang out was Taco Johns (where they all could inhale tacos by the dozen) - and it is located right off the interstate exit when entering Sturgis. Perfect spot for Wayne to see it.

Anyway, Randy found this old picture and sent it to Rick, who in turn sent it to me, so that I could print it out for Wayne to "welcome him home" from the fellas. You know, the same fellas who came to visit a few weeks back.

So, right before Wayne prepared himself to get out of his hospital bed (quite a process and he was determined to do it alone), I showed him the picture. Wouldn't you know it, his lip started to quiver as he said, "I sure do have good friends. That is so awesome."

And then, "Where did they do that?!" -- Thinking they just made the sign. So funny. Medicine head.

Anyway, the message back in the day holds as true now as it did back then.

Welcome home honey.

*An aside:

We are learning how to fine-tune his home experience. Last night he woke up in the middle of night in great need of pain medication, and I had gone out to sleep on the sofa (he adopted a new and improved snore ... It could wake the neighbors!). He tried for 45 minutes to get out of bed. :(

So, now we know he needs medicine by the bed, a heating pad under the covers, a straw in his glass ... and lots of sleep.

Daddy's Home ... Caeden's Point of View

I got Mom's iPhone and figured out how to take pictures. Here's Grandpa ...



And Dad. He got home today with a huge cut down his chest. All of the germs crawled out of his heart and he is all better now. He even has a special pillow to hold against his chest when he coughs.

Here's Mimi. She came over today and brought me candy and chocolate cake.

Here's Grandma. She got into the wine again.

And Claire. She started crawling yesterday and everyone made a big deal about it. So what? I can walk backwards, hop on one leg, AND do somersaults and no one says a word.

Dad is taking it easy today. He sits in his chair and walks around a little bit. I can't jump on him, and he can't pick me up, but I sure am glad he is home.

Mended Heart.

We are being held captive at home today. We're gotten 20" of snow so far and it is still falling...
A neighbor came over and used his snow blower to clear our driveway and I think of how nice that was, considering ours was just inside the garage. People are so wonderful.

Downtown, where the hospital is, the roads are clear. Can you believe that? Clear! It's frustrating to think it's business as usual downtown while we are pacing the floors and staring out the windows. If I have one person tell me, "Well, we did need the moisture," I will freak out.

Dr. Parker (Wayne's surgeon) came in to see Wayne this morning and gave him some good news - he gets to come home tomorrow!

Friday.

Wayne is having a good day today. His chest tubes were taken out this morning and he has been able to walk (2-4 laps around the floor) with a cardiac rehab nurse. His color is returning and he was able to eat some cheerios (up until now it has been jello and applesauce).

We're in the middle of a huge snow storm and it has prevented us from going up to see him tonight, but we're hoping for better weather tomorrow afternoon so we can get up there. We're expecting 10-22" of snow ... and looking outside I'd say we've gotten 8" so far.

The ball is rolling with MD Anderson. I talked with a nurse today; they want to check into his insurance (again, I give thanks for Microsoft's insurance) and get his pathology from surgery.

Anyway, just wanted to give an update.

Significant.

This is the first chance I've had to sit and type. I'm sorry you were all left hanging today ... believe me, I heard all about it from many of you! The problem was that I couldn't get WiFi in Wayne's ICU room, hence no postings ....

Our days have been emotional. We're so happy when we see Wayne able to walk a little further than he did the day before. We're thrilled when he says he is not in pain (the drugs are doing a great job of taking the edge off of his incision and both chest tubes). We cheer (silently - we aren't annoyingly loud or anything ...) when another IV comes out.

Wayne's blood pressure was sky high yesterday (the highest topped out at 151/100) and blood sugar was high (192). So they had to put him on an insulin drip to stabilize his blood sugar (totally normal after a trauma like surgery) and gave him some other medication to bring his blood pressure down.

Late today he was brought up to the cardiac unit (room 1008), and is no longer in ICU. His nurse was totally annoying and talked way too much, but other than that, he is happy to be moved because it is more private and quiet.

He has been sleeping most of the time, and will continue to do so while he's on pain medication, but he is slowly coming around and is able to carry on a conversation for 20 minutes or so before needing to rest or zone out for awhile.

We got some awesome news late tonight (I was already home from the hospital and his parents were on their way back). Dr. Hinshaw, Wayne's Oncologist got the initial pathology report back from his surgery. The chemo significantly shrunk the size of the tumor. Significant was her exact word. To have such a response is very surprising, as initially she told us she wasn't expecting to be able to measure results until 3 rounds of chemo.

Obviously we are thrilled. :) Off to drink a glass of wine with Donna and Dave.

We're drinking to "significant" tonight.

Every Reason

Yesterday as I stood over Wayne's bed and watched him sleep, I cried for all the trauma he has gone through. I cried for the long scar that now runs down his chest, for his veins that have already suffered a great amount of damage from the chemo. I cried that there is so much more to come.

And then I think of them.



I think of how Wayne does not feel like this journey is impossible, or even that hard. I think of how he knows that these two are worth fighting for. Are worth the pain, the surgeries, the unknown.


And I know that we have every reason to believe everything is going to be okay. Two really big reasons.


Playing with the kids this morning, and then off to the hospital for the day. I'll post tonight when I get home and let you know how he is doing.

Thank you all for being so interested in our story. Knowing you are out there praying for us and reading our journey makes this so much easier. Knowing we are not alone means everything to us. To all of us.

How you know Wayne is not suffering from neurological problems ...

As the nurses were trying to rouse Wayne from anesthesia they said, "Wayne the operation was a success! You are now a girl!"

His eyes flew open in a split second. ;)

Done.

Forgive the hasty post. I want to get back to Wayne ASAP. 

The surgery was a success. Dr. Parker was able to remove the tumor and re-routed the pulmonary vein so that the tumor could not intrude again.

The surgery took 3 hours and I have already been in to see Wayne. He was "awake" and asked if they got the tumor. He is, of course, completely out of it and will be for another day (at least).

He will be in ICU today and part of tomorrow, then back into a recovery room for 4-6 days. Then, he gets to come home and finish healing. No lifting for 3 months, no driving for a couple of weeks, and no flying for 2 weeks.

Once we hit the 2 week mark, we are off to Houston for a second opinion at MD Anderson. Most likely, he will have multiple rounds of chemo before another surgery (his hip) is scheduled. 

So for now, the first hurdle has been cleared. He passed with flying colors and the immediate danger of the tumor breaking off and causing a stroke is gone. I cannot find the words to express the relief and joy we are all feeling.

Back to hold his hand.

This cancer does not stand a chance. Not a chance.

We Wait.

Wayne is in the O.R.

They got a late start - his surgery started at 11:25 am.... We waited together in the pre-op unit, watching Doctors come and go - watching other patients and hearing their stories through the sheet curtains. They shaved his chest, talked to us about the procedure, what to expect post-op, and how his pain would be managed. 

Wayne was impatient; he loathes waiting. As anxious as he was, he said mostly he was relieved to be moving forward. To get the tumor out. He was not scared. Just brave. 

Dr. Parker is expecting surgery to last 3-4 hours. He is such a great guy - gave Wayne a hardy handshake and me a big hug. It's easy to believe that everything is going to be okay. I ventured to ask how big the tumor was. It's as big as a lemon. Wayne and I just looked at each other like, "What?!" How had we not asked this question before? I was expecting them to say a couple of inches long. Still in shock about that. 

For now we're sitting in the waiting room, waiting for news.

I'll post as soon as I can. I know you are anxious to hear.

Tomorrow

Sorry this is so late being posted. After a ton of messages, I finally got the hint (and time) to post what is happening.

Wayne is in the hospital (Presbyterian St. Lukes) awaiting surgery tomorrow morning at 10:30. Dr. Parker will open Wayne's chest and stop his heart. He's going to tease out the tumor and re-route the pulmonary vein. The surgery should take 3-4 hours to complete. As soon as I have any news I will do my best to post here (I'll have my laptop with me).

Wayne will be in ICU for the remainder of tomorrow and the following day. He'll up and walking by day 2 and hopefully released from the hospital in 4-6 days.

He'll have 2-3 weeks of recovery before he'll be able to function at a reasonable level, but at least he'll be able to be at home, in his own bed, after the first week.

He is in GREAT spirits - you know Wayne. Absolutely ready to get this done, and move onto the next treatment. He is such an inspiration and so strong. I am proud to be his wife. He truly amazes me.

So. As soon as we get some news after surgery tomorrow, I'll post details ...

Thank you for your prayers. It means so much to us.

5 words.

It all started early this morning with a jet-lagged Uncle John entertaining Caeden. Showing him the ropes of the vintage Slinky that the Easter Bunny tucked into his brown basket. (Does that first photo not look like a gritty Urban Outfitters ad?)



We waited for Claire to take her morning nap so that we could go to Mimi's house for brunch. To waste some time, a friendly game of 'get the balloon' was played. And played.




And that's about the time the great idea came to mind. "I must get the peeps."

You know, Peeps. The mushy marshmallow candy that hurts your teeth when you even mutter the name. Peeeeeeeps.

Grandpa and Caeden ate their weight in Peeps today. I am wondering why no one has reminded me to make Dentist appointments? I cannot be trusted to remember. Just so you know.



Something green is in his hand. I suspect it made it sticky. And if I look close, I bet I see green on the sofa, too. You gotta take the good with the bad, people.


Here we all are (missed you so much, Nik!) at Mimi's house. Fun, heart-felt, happy, and full are the five words I chose to describe our day.



My favorite picture of the day. Little girl, if your daddy could have had his heart healed by a touch, by a moment ... he would not be packing for the hospital tonight.