It turns out MD Anderson is exactly the place we've been looking for. Wayne filled me in on his visit with Dr. Patel and it went something like this:
1. Chemo protocol was incorrect. Mesna was not administered in the correct way (for example, per Doctor's instructions, I was giving it to him at night in a 20 minute IV push, and it should have been dripped for days continuously).
2. A new chemo drug will be added to the cocktail.
3. His scans (MRI, X Ray, CT) were so horribly inconclusive that Dr. Patel has no idea what base line is/should have been. All of this will be re-done today to establish a base line (measurements of primary tumor in hip and mets in lungs).
4. Appointments happen much faster. Communication is paramount (we have access to nurses 24/7 via internet).
5. They know what they are doing. They KNOW what they are doing...!
6. Wayne is doing great. He sounds positive and encouraged. He sounds at ease.
7. I, however, have had to talk myself out of drinking a beer at 9:30 am to take the edge off while I waited for his call. Is it wrong that I miss my plastic vodka flask??
8. Wayne is headed home tomorrow. He gets to spend this weekend and next week non-chemo'ed up. He gets to celebrate Claire's 1st birthday feeling good. I am so excited for that! I hadn't planned anything for her party because we thought he'd be on day 3 of cycle 3 of chemo, which historically, puts him in the hospital.
I think our little girl will get balloons. A cake. And she will have her Daddy.
9. We will be headed back to Houston for his 3rd round of chemo next weekend (last weekend in May). It will be out-patient, so he'll spend his days in the infusion room, and then will be able to rest in a hotel room instead of the hospital.
5.19.2009
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