Outside Looking In

Wayne is sleeping ... after going for 2 rounds around the floor (walking as much as possible), he is wiped out. He has had a rough day - really feeling the effects of chemo - and is trying to sleep as much as he can (thank you, Kellie, for that advice).

We are hoping he still gets to come home tomorrow, although, after just talking to his nurse - who hadn't heard that, we aren't sure.

The quiet of the itty bitty closet (his room) is punched with HGTV in the background, the drip, drip, drip of the chemo, and the sound of his bed moving every 30 seconds (which he has gotten used to). He opens his eyes every once in awhile to ask what I am doing, and how I am doing. The question chokes me up because, really, what I am supposed to say? He wants to know that I am okay, but that will only be the case if he is.

Some friends gave him the book, "The Shack." He doesn't have the stamina to even read a magazine, so I have borrowed his book and have started to read (for the first time since having kids, I think!). I haven't gotten that far into it, but so far it is good - it's about the spiritual journey of a man who has gone through (too) much in his life.

Caeden is hanging in there. He was SO excited that his aunt and uncle are here (my brother and his wife). He had school today and was excited to go see the Leprechans. I didn't know about any of that - I didn't even lay out anything green for him to wear - but thankfully I have Melissa to keep me in the loop with his schooling.

I just looked over at Wayne again as he shifts to get comfortable in his bed. He's got a pillow from home and some new pajama pants on. While I have always been protective of him, seeing him in bed brings out the Mama Lion. "Do you need new socks? More water?" My caregiving abilities are hindered to just a few tasks I can do for him, but the love behind them is greater than ever. I have never put on a pair of socks so gingerly or have been so obsessed with making sure he has enough ice water.

It doesn't look like the Doc will be in today, but hopefully we'll have some more news after Tumor Board tomorrow. Wayne has his last dose of chemo tomorrow around 11 am (runs 2 hours) - and then, finally a break.

Thank you all for your support. The kindess coming from everyone has been so appreciated!

Full of Hope,

Val

What a difference a day makes

Now I see what people mean about chemo...I feel great now but this morning was a rough one. I woke up with some nausea and am getting over it now. They put me on some new meds that hopefully will stop it before it happens but wow! :) I guess that means the chemo is working and I am definitely not complaining. I am currently going through day 3 of the first round. It feels great to get this moving. As a far as I know, I am still going home tomorrow evening. I am looking forward to that more than you can imagine.

My sister left for LA last night and my parents just left to run back to South Dakota for a few days. I am not sure how much fun I am right now anyway :) I am just laying around and going for the occasional walk. I promise I will be much more fun at home. :)

Otherwise, not much new news. I am waiting for the second team of docs to come in and tell me what they are thinking for my hip. I will post afterwards on what the plan is. I am hoping to get a schedule or calendar together on how this is all going to happen. As always, I appreciate the emails, calls, prayers and all of the other support that you have shown my family. It means so much to me.

Wayne