Wayne's Oncologist, Dr. Reznick, was in contact with Dr. Patel at MD Anderson this morning. It looks like MDA does not have a clinical trial that fits Wayne. Dr. Patel and Dr. Reznick conferred about Wayne's case and agree that time is of the essence, and that chemo needs to be started right away.
Because MDA does not offer anything that we can't get here, Wayne has decided to stay in Denver. He is being transferred to Presbyterian St. Lukes (PSL) Hospital this afternoon and will be under the care of Dr. Reznick's partner. The Cardio-Thorasic & Oncology Teams at PSL are top-notch and we feel it's the best place for Wayne right now.
Wayne will be treated in-house and will not be coming home for awhile. We are guessing 2 months but we aren't 100% sure. It depends on how he reacts to treatment.
It seems like an eternity since Sunday - everytime I go to sleep I look over at his empty side of the bed and just want to run back to the hospital and climb into bed with him. I smell his shaving cream, touch his clothes hanging in the closet, and trip over his shoes that I refuse to move. I feel anxious when we're not together but know he needs time to himself - to think, to sleep, to read all of your emails ...
So for now, we are all just anxiously awaiting his transfer, loving him, and praying for him.
As always, I will update as I know more. My goal is to do it daily ...
3.13.2009
Subscribe to:
Post Comments (Atom)
Posts
I'm glad Wayne will be close to home. I know it's hard..we think of you so SO much.
ReplyDeleteWe're here if you need ANYTHING!
Vanessa
Oh Val, I wish I could lift this from your shoulders. There aren't even words to adequately say how one feels except that this just sucks. I am glad that you have this blog to talk through your feelings. You and Wayne WILL get through this. Just keep reminding yourself of that. You will get through this, you will get through this, by the grace of God, you WILL get through this. Big hugs. Carisa
ReplyDeleteAgain, thank you for your diligence in keeping us all updated. I have been watching your live feed and it is amazing how many people are on your blog, and are joining you all in this journey. I am so glad that Wayne is best suited to stay in Denver. It is so hard to be away from home and especially with little ones in tow. Your support network is much more vast, I'm sure, and your bed is critical to get the rest YOU need, that is when your mind and body allows it (not to mention 9-month-old, right?).
ReplyDeleteStill with you, awaiting the next update,
Paula
wayne and val
ReplyDeletejust hugs, love and lots of angels surrounding all of you ........am glad you will be able to stay close to home and the kids will be close and able to see and hug Wayne too. there certainly is healing in love and prayer. stay strong - Pam and Tom
I am finding comfort in knowing that you are able to stay in CO and give the kids (and yourself) their daily routine. Please try and get some rest for the road ahead and wrap yourselves in the love that brought you together.
ReplyDeletecat
I agree I wish somehow if we could just all make what your family is going through right now go away and off Wayne and your shoulders. I pray for your strenth and Wayne's in the months ahead.
ReplyDeleteOur thoughts and prayers go out to you and your family. Putting your trust in the doctors and your faith is the first step to healing. Kacie
ReplyDeleteVal and Wayne, Again, I am thinking of you all day and all night. I wake up in the night thinking about you, wondering if you are awake, and wishing that I could take all of this away for both of you. You are both so strong it is amazing. Take care of yourselves, and Val, maybe someone can take the kids for a night once in a while so that you CAN crawl into bed with him and cuddle....I used to stay overnight at the hospital with my mom a lot. (So much, in fact, that I knew how to run the IV machine.) :) They may even have an extra bed that they can roll in there for you to use. You are always in my heart and on my mind. Kellie
ReplyDeleteVal and Wayne,
ReplyDeleteMom just called me with this news. I got on here as fast as I could for the recent info. I'm not sure what to say except I love you both very much. I'm here for anything you need and just a flight away. Love you, love you, love you...
Nellie
Val & Wayne,
ReplyDeleteI am thinking of you & praying for you all. I have been trying to think of the "right" words to say all week. I don't think there are any. I have found myself waking in the middle of the night to pray for your family and the doctors. I can tell you that I have hugged the people I love a little more than usual. My girls are wondering what the hell is wrong with me!!! I want you to know that you are in my thoughts and prayers. Need anything...Call.
Love, Amber Renee'
Typical for the Havens family...I couldn't figure out how to reply to your beautifully written blogs, Val . (So, I called Amy and asked her if she replied and she kindly walked me through the steps!)
ReplyDeleteWayne, we can't stop thinking about all of the memories we've shared with the Koop's. One that keeps popping into my head is the time you captured pictures of Mary riding her bike for the first time...granted, John came pounding on your front door, demanding you to grab your camera for some of the best shots you'd ever get of OUR daughter! Ha! How about the pictures of our birth announcement for Mark...those close ups of just his feet...suggestion from Val and taken by you, our own "personal" photographer. But wait...we have also been of some service to the Koop's in a similiar way...maybe in the way of a videographer? Are you thinking of that time? Remember when John called you when you all were leaving the hospital to bring home Caeden and said, "I'm going to get my video camera and we'll get you when you pull into your driveway for the first time!" (Not sure if Val would have approved, since we caught some tears falling, maybe it was a few hormones and an overwhelming love for her too involved neighbor! :) I'm cracking up at my husband.)
Anyway, get better soon because there are new memories to be made. We still need to do Key West or some other place w/ warm temperatures. I can picture cold beers in our hands, Kenny Chesney in town, jamming our fingers, wiping out on our bikes, and misplacing jewelery. (John and I are laughing.)
Parker Colorado or bust! Here we come. We love you both. Love, John and Lisa
Val and Wayne, I've just heard from the Havens of your heart breaking walk. We are praying you will feel God's presence surrounding you and holding all of you in his hands. Praying for wisdom of the doctors, loving hands for those caring for Wayne and peace for all of you. Rhonda, Valentin, Natasha and Andre'
ReplyDeletePhilippian 4:6-11, Mathew 7:7-8, Mathew 6:25-34