I have been trying to get my new blog finished up but I am, apparently, highly inefficient and still not done with it.
I want to post session pictures on the new blog so for now, you must settle for more personal, family stuff here, okay?
I look at this girl, with her disheveled hair that she won't let me fix, her eyes that tell me she is up on to something, and that look that tells me she knows better ... and a quote I just came across in Real Simple magazine struck a cord ...
"My Mother had a good deal of trouble with me, but I think she enjoyed it."
Mark Twain, Chapters From My Autobiography
So.
Today I am treading water. Cleaning. Laundry. Thinking about cooking.
But my children have other ideas. Like eating. Wanting to play. Have attention be bestowed upon them. The nerve, right?
Wayne is hanging in there. It is very difficult for him to walk and to get around (the stairs are impossible) but he did manage to get some fresh air today and meet Randy for lunch.
He is working a ton. Most of the day. And night. It's nice to see. Gives me peace of mind that his "chemo fog" has lifted from his brain.
He needs lots of rest. And I do what I can to make sure he is comfortable (and has water, which is his favorite thing) but it pains me to look at him. So, so thin. I hope this break allows for some weight gain. I don't think I have seen him this thin - not even in High School.
And when people, who only have the best intentions, ask me how he is, or how I am ...
I just want to cry.
How do you THINK it is going?!
And I am very aware this attitude of mine needs adjusting. I am aware that I get mad.
I am aware and am not lost in lala land, okay?
So if I offend you or do not respond at all, please know it is not you. It's me.
Sometimes I just need some space. And sometimes all I want to do is vent here.
So I do.
And then get sensitive about it.
Nice and complicated, I know. Might make you want to stay away?
Everyday we wake up in the same loop. Same cancer. Same news. Same Wayne who can't do much but lay down. Same Val that tries to keep it together but is so tired and whiny that she can't even stand to listen to herself.
Same Caeden ... that repeats two things:
1. Any physical complaint Wayne has, Caeden has. If Wayne says, "My leg hurts," Caeden will say the same thing all day.
Yesterday we were at Costco and he told me he couldn't walk because of a blood clot.
I stopped dead in my tracks, turned around in the parking lot to look at him, and said,
"You do not have cancer. Stop it."
He could tell I was just about to either cry or freak out,
so he just nodded and started to walk.
2. (The other thing he repeats is "shit," which I stopped saying, thank you very much.)
Think we all are doing our best to tread water and ...
I need to remember I am not the only one I need to save from drowning.
So if you want to know how it is going ... there you go.
So if you want to know how it is going ... there you go.
Girl, I for one would be worrying if you weren't TALKING about how you are really doing...I think you are crazy strong and are doing quite a good job at treading water. I also think it is healthy for our kids see us vulnerable, we all have emotions and sometimes they get the best of us and that is normal.
ReplyDeleteSending lots of love over the Rockies!
I honestly believe you are handling this better than 99% of the rest of us would. Hang in there, and know you have an army standing behind you praying for you every day. Just remember what matters most, and enjoy living 'in the moment.'
ReplyDeleteMine say "ass"...a lot...They may or may not have gotten it from me. Love you.
ReplyDeleteNot sure if anyone has mentioned this before, but a Child Life Specialist would be perfect for Caeden (and Claire for that matter). They are people who specialize in helping children work through disease and hospitalization, as well as all the feelings and thoughts that go with it, often utilizing art, play, role-playing, etc. Whether the child is the patient or related to the patient, a Child Life Specialist is the best person to call on. I would ask if someone is available through Wayne's treatment center in CO; if no one is available in the adult clinic, they can tap into the social work network and find you a good one (maybe affiliated with Denver Children's).
ReplyDeleteCat ... Thank you for always checking in. Love you to bits. And love all of H's pictures today!
ReplyDeleteAnonymous ... you are most eloquent with your words. You could be one of three people with that writing style. Regardless, thank you. Seriously.
Paula ... made me laugh. I miss you so much.
Kat ... looking into those resources - it didn't occur to me they existed. Thank you for speaking up.
XOXO.
Val
Val- I can not say that I know what you or your family are going through. but I will say this...for all the weaknesses that you think you have you have double that in strength. you are a wife, a working mother and a caretaker. it is ok and absolutely necessary to have a place to vent your hatred of this disease that has invaded your family. it is why I blog about my cancer and I wish that my husband had an outlet to express his anger and confusion and doubt. It is easy to keep it all inside and let it fester but letting people know what is going on with you is the best way in my opinion to keep some of your sanity...and let others shelter you you with the love and prayers that we all know you need. you and you beautiful family are in my heart and on my mind daily. -continuing to pray for you,
ReplyDeleteChelsa
hey there Val I am thinking and praying for you all! Hang in there - keep the faith. I can't imagine how you are holding it together, but know that we send all of our strength to you and Wayne. You have more strength in you than you know and I am sure it is being tested. But we are there for you for whatever you all need!! Love, Kristin Rozier
ReplyDeletesometime you must feel like a steam roller has been placed on your shoulders. Reading you blog it seems you have everything all together.(if that helps) I'd say if you didn't have moments like these then you wouldn't be living. Take care of yourself. Prayers for you and the family.
ReplyDeleteVent away. That's why we're here. To listen. On a much, much lesser note, I once had a very long commute as I changed jobs before the house sold. It was over an hour and over a mountain. In winter. People kept asking me: "How's the commute?" I started saying wiseacre things, like: "Just great. I'm listening to Norwegian language tapes and learning to knit while I drive."
ReplyDeleteYou can't say it in front of the kids, but cancer sucks.
--a survivor.
I am trying to stay up to date on your blog. Thinking about you and praying for you every day....stay strong the best you can.. Dan
ReplyDelete